Lived Experiences of Parents in Parenting Children with Special Needs

AUTHOR(S)

JESSICA E. ALCANTARA NARCISO D. RABARA, PhD

ABSTRACT

— The purpose of this research study was to explore the lived experiences of parents in parenting children with special needs using the phenomenological qualitative research approach. Ten parents of children with special needs from Urdaneta 1 Central School (SPED Program) and Urdaneta National High School (SPED Program) were chosen as participants of the study based on the children with special needs from U1CS and UCNHS. The data were gathered through indepth interviews using a semi-structured questionnaire. To delve deeper into their personal experiences as parents with special needs. More specifically, this study aimed to give voice to these parents by encouraging them to be active participants in the research process. This research explores the profiles and lived experiences of mothers caring for children with special needs. All participants were married, full-time homemakers from low-income households, predominantly aged 36–40, with limited educational attainment. Their children’s disabilities include deafness or hearing impairment, autism, Down syndrome, and multiple disabilities. The findings reveal that these parents navigate a complex journey marked by emotional, financial, and social challenges. Initially faced with grief and denial, they gradually develop acceptance and resilience, drawing strength from faith, family, and their children’s developmental milestones. Financial burdens, limited spousal support, and concerns about the future add to their struggles, yet moments of pride and fulfilment emerge as children achieve progress in their ways. These insights underscore the need for accessible, individualized support systems to empower families and promote the wellbeing of both parents and children. Keywords — Parenting, Special needs, Lived Experiences, Challenges, Children, Parents